Orkambi

Stephen Hepburn, MP for the Jarrow Constituency has continued his campaign to get the drug Orkambi made available on the NHS for people suffering from Cystic Fibrosis.

Last month, Mr Hepburn asked the Secretary of State for Health and Social Care, if he will take steps to keep MPs updated over the summer parliamentary recess in the event that any progress is made between Vertex and NHS England on making the drug Orkambi available on the NHS for people with Cystic Fibrosis.

Around 10,000 in the UK suffer from Cystic Fibrosis which affects the lungs. 

Orkambi is already available in the Republic of Ireland, Austria, Denmark, France, Germany, Luxembourg, the Netherlands, Italy, Greece and the United States.

The Jarrow Constituency MP recently received a response from the drug manufacturer Vertex to the letter that was signed by over 60 MPs from different political parties urging them to come to an agreement with NHS England so that the medicine can be made available without further delay.

In the letter, Vertex stated that they have not recently met with NHS England and the negotiations are at deadlock. 

Earlier this year, around 550 people from the Jarrow constituency demanding that the drug is made available on the NHS. Across the UK, over 114,000 people signed it.   

Stephen Hepburn MP said:

“The deadlock between Vertex and the NHS is very frustrating for many local people and their families who suffer from Cystic Fibrosis.

"Their patience is wearing very thin and rightly so. Every day that goes by their suffering only worsens. 

"Orkambi offers hope and the deadlock must be broken.

"I am going to keep up the pressure on the Government to intervene in this situation until it is made available on the NHS.”

Meet your MP

 Stephen-Hepburn-MP

Stephen Hepburn has served the Jarrow Constituency as MP since 1997.

He was last elected to serve in June 2017 and won the seat with a conclusive 17,263 majority.

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